When our daughter was 18-months old we were dealt a double gut-punch – she was not only diagnosed with the rare childhood cancer neuroblastoma, but this cancer had also triggered a severe autoimmune disorder called Opsoclonus Myoclonus Syndrome. Surviving cancer meant dealing with a lifetime of issues that could make it hard for her to walk, talk, jump, or play. Even worse, a common cold could trigger the autoimmune symptoms of the incredibly rare and tragic disease.
Even more heartbreaking to us was the fact that modern science knew so little about OMS and how to treat it. We were determined to make a difference for our daughter and the children who would follow in her footsteps. Undeterred by the rarity of the diagnosis, we contacted The Pablove Foundation to establish the first-ever, publicly supported research fund dedicated to the advancement of knowledge on Opsoclonus Myoclonus Syndrome. With your support, we will finally see progress against OMS.
Thank you for fighting childhood cancer with love with our family!
Crystal, Naveen, Keira, and Akemi